One Step Forward, One Step Back

It seems you can never get ahead by following these steps but it's what we have been dealing with.  How much longer will he continue on this path?  Forever?  Or will things improve?  We had made so much progress.  It was amazing that he was behaving so well.  He was doing great in school.  He was being kind to his siblings.  He was even problem solving.  He was so good at mass that he started practice to serve the alter.  And then Sunday........

I saw aggression.  He became very emotional.  He would start crying at the drop of a hat.  He would not fall asleep even though he was heavily medicated.  The teacher reported today that he was all over the place and not focused.  They said they saw aggression.  What changes the forward progression?  There are no answers with this condition.  No way to plan tomorrow and no way to avoid taking the steps back.  It breaks my heart for him.  He wants more than anything to play football and to serve the alter.  I hope that he gets the chance to serve as football is forever out! 

Besides the emotions and behavior he has slipped in his memory.  We were walking into the Y Monday and he wanted to know "when are we going to the Y?".  He is having trouble again with being able to say what he is thinking so it comes out very bizarre and hard to follow.  It will come out something like this:  He wants a ham sandwich so he will ask for one of those square things that have that meat stuff in it and that white soft stuff on the outside.  If it's lunch time you can figure that one out after a few attempts.  But the other things that come out are so hard to follow that some of it we never figure out. 

It must be frustrating for him.  Perhaps this is the reason for the emotions and behavior.  Perhaps he knows that he mind is not functioning correctly and he gets frustrated.  Perhaps he is suffering what we don't see and his behavior is the message to us that things are not working correctly.  Perhaps he is unaware of what is going on.  Perhaps tomorrow will be better.  Perhaps.....